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caregiver support for World Alzheimer's Day plus
On the occasion of World Alzheimer's Day, Rilo Castilla Juan Gonzalez, director of residence Arteva Rivas, wanted to emphasize the figure of the family-caregiver for their commitment and dedication to such a complex disease.
On September 21 is celebrated on World Alzheimer's Disease, a disease that affects 30-35 million people worldwide and in Spain is estimated to be between 375,000 to 400,000 people with this neurodegenerative disorder of the central nervous system (some studies say as many as they can over a million patients), in most cases, people over 65 years although there is a percentage of people suffering from this disease younger.
1 day is important because it attempts to social awareness of a disease that affects many people who start to have memory problems, to repeat the same thing over and over again, to have difficulty finding the words to talk, to remember appointments, to retain the new information that is given ... but as with most chronic disease ... not only affects the patient, but affects their immediate family ... ... to your loved ones.
Alzheimer's Disease, is known as the "forgotten disease" and many times if not for family associations, the real "forgotten" disease and family caregivers would be threatening forms to their patients at home, and sometimes without many resources and support ... their families to the onset of illness does not understand what is happening to your loved one, get angry with them and suffer a lot ... and when you are diagnosed, even though the latter sense that something bad happens, they can not believe what the specialist says and suffering.
These family-caregivers (that more than ¾ are women) are the caretakers who live and live "by and for" the illness of their loved one, seeking life to try to take care of his family-sick ... which often feel misunderstood by their environment and loneliness (sought or imposed). Are those when the disease progresses have to make difficult decisions, such as home help for the basic tasks of daily living.
Those who decide that their family has to exercise the mind and include them in memory or programs Day care centers and suffers because his family refuses to go, but "must decide for him, because he believes it best and in some cases or in many ... feel guilty for "letting" your family into the hands of professionals, but they are strangers.
These
family at a time when the disease progresses and circumstances permit "should" take the decision to enroll your family in a residence complex decision, which means that many families feel they have "failed" as caregivers, and again appears the damn "guilt" because delegating care professionals and they do "their lives" will cause pain and damage ... because they know they can never replace the love they give ... and they are right.
to you all, the "Not Forgotten" September 21, but sometimes you feel forgotten the rest of the year my sincere admiration and respect ... with 1 professional has been in the "World Alzheimer's 15 years working for them and for you.
Juan Gonzalo Castilla Rilo
Director of Residence Arteva Rivas
Psychologist Social Gerontology Specialist
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