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Today is September 21, World Alzheimer's Day Note
Family and caregivers 'recall' the World Alzheimer's Day
www.cuidadoalzheimer.com Today is September 21, World Alzheimer's Day. A date designed to rescue from oblivion social, not just those who, from his illness, white tinged with memories of a lifetime but also the people around them. Men and women forced to take forces and recognition memory in Alzheimer's face, their husbands, wives or parents.
speak of those 3.5 million people (from family and patients) the disease and living with them, initiatives such as the publicity campaign of the association in
and television stations in the country
dawn today talking about Alzheimer , a disease that Lourdes's husband suffers from a few years ago. A former employee of an insurance company that it now needs the supervision of his wife to shower or eat. And that is in the first phase of the disease.
Lourdes attends Monday through Friday at the association center has AFAL in Getafe. A small shop, which assists families and patients, thanks to the hour and a half of physical and mental stimulation they receive those affected. "They used to their disease and allows us to take a breather," says Juanita.
Like Lourdes, Agustina, Ana, Fernando, Teresa, Desiderio, Marisol e Isabel, todos ellos familiares de personas con Alzheimer, ven en la asociación que dirige Juani un pequeño respiro en un ‘trabajo’ que les ocupa todo el día.
Ayer, nos desplazamos a Getafe para poder hablar con ellos y transmitir así su testimonio, cargado de la fuerza y coraje de personas que, desde hace tiempo, se han visto obligadas a luchar en solitario. Tanto es así, que sólo Desiderio, que cuida a su mujer con Alzheimer, recibe la ayuda de dependencia. Unos 200 euros, de los que se queja, ‘no le sirven para nada’, a lo que sus compañeros le recuerdan que por ridícula que sea ‘algo is something. "
"You have to help you cut the meat, you have to spend all day with her. This situation is a mess and the women being sicker yet, because men want a lot but we are not as capable as women to do things but we put a lot of interest. Two hundred-odd euros ... it is useless, "says Desiderio.
However, cases like Elizabeth's are even worse. His father has Parkinson's, Alzheimer's and her mother both live with a pension is not enough to hire someone to look after them. Therefore, "my father can only pay a girl a few hours, so that shower my mother feed him and take a walk "he says. Then, when their children leave work, join in order to help his father.
People, as the father of Isabel or the very Agustina (wheelchair walks newly operated leg), which must be maintained, have become carers of people already starting to show some kind of 'aggression' fruit of their disease.
is the case of the husband of Teresa, one of the patients who go to the association. '
What I'll tell you, he is in his world. Now nothing, not wanting to go to buy, or want to leave or want anything. The only thing that comes out is to tight for his snuff, is mischievous. He takes it, gets up, and without breakfast or anything ... But hold on one, he is returning with a genius who does not want anyone, me or your children or grandchildren 'he says.
Teresa in the mirror also reflects the situation of Marisol, who cares for her mother with Alzheimer's after the death of his father, who previously was faced all his care and he fell full weight of being the primary caregiver.
Lourdes, Agustina, Teresa, Desiderio, Marisol, Elizabeth, Juani stress the need to care for the caregiver also right when it finishes the hour and half family therapy. In the end, Ana and Fernando could not speak and is now due to their wives, husbands and fathers.
Just 20 minutes of conversation has had time to meet their demands and thanks to the help of this association, which for them is much, amid the solitude of the government.
"I have to say it here loud and clear, that is not our responsibility, it is for the government. We are doing work that is yours, "he insists Juani.
And not only what she says. In a report published by the Alzheimer's Alzheimer
From here, we hope that days like this contribute to the September 21, people like Lourdes, Agustina, Ana, Fernando, Teresa, Desiderio, Marisol, Elizabeth and Juanita are not so forgotten by everyone.
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